"Write what you know" they say.

Even of what you know is benefits advice work and writing stories about it only pays enough to keep your colleagues in biscuits!



Tuesday 14 March 2017

Catching up (part 1) - Age of Uncertainty


In case you've been wondering how the 'welfare rights lit' gang are getting on, here's the first of a few short stories looking at how they are now...

    'Here we go again, Lyn love.'
    Terry Walker slumped onto the settee next to his wife's armchair before handing her the day's one non-glossy piece of post.
    'It might just be the annual uprating letter, luvvie...'
    As soon as she unfolded the dull, greyish paper from the brown envelope, Lyn knew it wasn't.  She had been volunteering at the Solent Welfare Rights Project for over three years and, in the past year, had become very used to reading letters like this to other people.  She had known for a while that there would be one for her too and, one day, for Terry.  She was still upset.
    'Bugger!'
    She and Hilary had first run through the activities and the descriptors for Personal Independence Payment together, soon after Lyn started doing advice work.  Lyn paid close attention, especially when Hilary explained that one day almost everyone getting Disability Living Allowance - DLA - would have to make a claim for Personal Independence Payment, or PIP, instead.
    'Even if they've got their DLA for life?'
    'I'm afraid so, Lyn.  Unless you were sixty-five or over on 8th April 2013, you'll be invited to claim PIP.'
    During the difficult year of her appeal, against an unjustified accusation of benefit fraud, Lyn had learned a great deal about the assessment of her DLA.  Whereas once she had believed she got that because she had a permanent spinal injury, she had come to realise that it wasn't the nature of her disability that mattered, it was how it affected her ability to look after herself and to get around.  After no end of trouble, a tribunal had eventually decided that she reasonably required attention in connection with her bodily functions frequently, throughout the day, which entitled her to the middle rate for care.  At the time, she was told she had this indefinitely.  They had also declared her virtually unable to walk and so eligible for the higher rate for mobility.  That was an indefinite award too.  She and Terry had opted to use the latter for a Motability car; it was only a couple of months since their nice new Vauxhall Corsa had arrived.  She often teased Terry that he spent more time polishing it than driving it, but it enabled he and Lyn to do their shopping, socialising and volunteering.  Terry, who said he had no head for rules and regulations, spent a couple of mornings gently pottering about making up parcels for the customers of the Community Café's Food Bank while Lyn saw her clients.
    It was only when the team had been talking about pension changes and Hilary had remarked that she would have to work until she was sixty-six, that Lyn realised she wouldn't get her pension at sixty either.  That would mean six extra years of being assessed for Employment and Support Allowance, or whatever it was by then.  Everything kept changing.  It wasn't fair.
    Although Lyn hadn't asked directly about her entitlement, she soon knew enough about PIP to be able to make a rough self-assessment.  PIP used a points system to decide if you qualified and what you got.  Lyn was fairly confident she would score four points for needing assistance to cook a main meal, as she couldn't lift hot pans or dishes safely with one hand while holding a stick or the worktop for balance with the other.  She needed aids and appliances to manage her toilet needs and to shower, which would get her two points each - enough for the same rate of PIP for daily living as she got in DLA - although Toby had been saying something about an Upper Tribunal decision on bathing and showering which might give her extra points over that, because she couldn't use a bath.    She wasn't clear where the case law had got to on dressing and undressing, which she had to do sitting down; at one point, her bed would have counted as an aid for that but when Tom had been checking one of her advice letters, he had suggested she rephrase what she had written about this to make her client's two points for this activity less certain.  But she often needed Terry's help to put on her socks or tights, so perhaps there were still points due for that. 
    She managed her own medication, still took responsibility for most of the bills and, since starting her voluntary work, had gained enough confidence that engaging with other people, even strangers, now came as second nature to her.  Overall, she should be no worse off on the personal care side.  She might even gain a little.  She wasn't confident enough of that to initiate a new claim without waiting to be invited to do so and anyway, on the mobility side, things were a lot less certain.  Certainly, none of the planning and following a journey descriptors applied to her.  Physically, when it came to stand and move, some days were better than others.  Using her crutches, she estimated she would still have been up to walking round to Susan's, if Susan still lived in her old house.  She could park right outside the Community Café but the building was quite big inside and, by the time she reached her desk, opposite Deepak and next to Jenny, she would probably have walked over twenty metres.  It was a little further still if she went straight to the ladies, and she didn't actually stop to rest on the way, though whether she could do that repeatedly was open to question.  That was likely to be the crux of the case.  Just as she and her colleagues advised their clients, she would have to test herself over the next couple of weeks, before the form was due back, and make a judgement based on that.
    'I'll make a start on that tonight, if there's nothing good on TV,' she told her husband.  'I don't expect there is.'
    Terry picked up the paper and thumbed through to the entertainment pages.
    'Britain on the Fiddle,' he said.  'Richard Bilton joins the investigators chasing Britain's benefit cheats.'
    'More poverty porn!' snapped Lyn.  'Bastards!'
    'You're starting to sound like young Martin!' laughed Terry. 
    'Now I do his kind of work, I can see why he swears,' Lyn replied.  'It's programmes like that which allow the Government to get away with all this!'  She brandished her form at him before stuffing it in the plastic bag on the handle of her chair where the important papers for her attention went.
    'You'll help me with mine when it comes, won't you?' Terry asked.
    'Of course I will, luvvie.'
    Lyn already knew that Terry would get nothing when he was reassessed.  She had run the sums for him even before she had considered her own likely score.  She hadn't the heart to tell him.

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